I thought I would post about #Dystonia, it may be a long one. I’ve had it for 42 years, my story might help someone who is dealing with something similar or does a search on Dystonia. It’s hard to forget that exact time when you realized others may not view you as “normal”. I use that terminology as it may resonate with a wider audience. People can fall outside the mainstream “normal” for a number of reasons, the internal feelings and coping mechanisms might be similar.

I was 27 when I noticed a very slight tremor and twisting in my neck that I couldn’t control, I thought it was invisible to others until one day a co-worker commented on it. I was devastated that it had become noticeable to others. The GP sent me to an Orthopedic Surgeon as it seemed neck related . The surgeon didn’t think he could help but did an operation anyway. It didn’t help, the #tremor was still there.Continue reading→